ABOUT US

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Our Values

We believe that people with Down syndrome are just as capable of the level of capability determined as average for people without "disabilities." What prevents people with Down syndrome from achieving their full capability is being intentionally, and unintentionally, discriminated against, and mistreated, by their families, societies, education systems, medical care providers, and governments. Even if a person with Down syndrome's family treats them as they would any child without a disability, they are still impacted by their societies, education systems, medical care providers, and governments. We know that if people with Down syndrome are treated equally to how anyone without a disability would be treated by their families, societies, education systems, medical care providers, and governments, they can graduate from high school, graduate from college, find careers, become entrepreneurs, get married, start families, and more. 

We believe that people with Down syndrome should not be denied basic human rights or freedoms because of they have Down syndrome. For example, being given the same treatment and opportunities as anyone without a disability would be by their families, societies, education systems, medical care providers, and governments; marrying; starting a family; etc.

We believe that people with Down syndrome are unique in the fact that they have the natural ability to unconditionally love others. Unconditional love does not mean that you like everyone, nor does it mean you excuse cruel words or actions. It also does not mean you are constantly happy, kind, or in a good mood. Unconditional love is the ability to immediately see the humanity of others, and to approach and treat others with respect, no matter their words or actions. For example, many people with Down syndrome would still include someone who has never included them.

We believe that people with Down syndrome should be the leaders of the movement to save Down syndrome. While support from family, friends, and others is very important, the voices of people with Down syndrome should not be quieted, or silenced, by the voices of well-meaning others. In other words, an ally's advocacy for people with Down syndrome should involve lifting up the voices of people with Down syndrome more than it involves lifting up their own.

We believe that the act of genocide, committed by encouragement, pressure, or force, of mothers to abort every baby that would be born of a certain race, gender, "disability," etc. is an inhumane crime. We do not actively support the pro-life or the pro-choice movements, due to when we take action with the goal to end the genocide of people with Down syndrome, the debate of the morality of abortion as a whole distracts others, overshadows the actions, and "road-blocks" the movement. The debate of the morality of abortion as a whole can be had elsewhere, but as far as Save Down Syndrome is concerned, the morality of abortion as a whole is not a topic we will address or take action on.

We believe that all people with all "disabilities" are affected by the same/similar genocide, mistreatment, and discrimination that people with Down syndrome face from their families, societies, education systems, medical care providers, and governments. Save Down Syndrome is in support of all people with "disabilities," and focuses solely on people with Down syndrome due to the fact that people with Down syndrome are openly targeted more often than those with other "disabilities." 

We recognize the humanity of every person regardless of "disabilities," races, ethnicities, genders, sexualities, religions, etc. While we do not support the beliefs or actions of anyone who demonstrates hatred toward others, we still recognize their humanity, and love them (not their words or actions) just the same as anyone else. We must all work together to save Down syndrome, and that includes showing others compassion and starting constructive conversations, even if they do not show the same to others.

We believe that while politics is important, it is not our place to support any politician or political party as an organization. Politics has its place, but if we want to save Down syndrome, we need to put those boundaries aside and work together despite political affiliations. We welcome people of all political affiliations to join our movement. We may support certain laws regarding ending the genocide, discrimination, and mistreatment of people with Down syndrome, regardless of the affiliation to a specific political party or politician. We may support specific actions or words of a politician if the specific actions or words support ending the genocide, discrimination, and mistreatment of people with Down syndrome. This does not mean that we support the politician, nor does it mean that we do not support the politician- it is possible to remain neutral while supporting their specific actions or words.

We believe that while religion is important, it is not our place to support any religion or religious figure as an organization. Religion has its place, but if we want to save Down syndrome, we need to put those boundaries aside and work together despite religious affiliations. We welcome people of all religions to join our movement. When someone in our movement includes their religion in their work to save Down syndrome, this does not mean that we support the religion, nor does it mean that we do not support the religion.

 

OUR HISTORY

 
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Save Down Syndrome, Inc. was founded in September of 2018 by Kaitlin Pepper, in honor of her brother, Austin Pepper, who has Down syndrome. Along with the first board members, Lindsay Robertson and Ellie Fizer, Save Down Syndrome has grown into a large organization with a global presence. Ending the genocide, discrimination, and mistreatment of people with Down syndrome has always been, and will always be, the main goal of Save Down Syndrome.

Pictured: Kaitlin and Austin

 

 AMBASSADORS

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 VOLUNTEERS

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  UNDER CONSTRUCTION | COME BACK SOON

PARTNERS

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BUDDIES OF THE BLUEGRASS

AMBASSADOR BRACK DUNCAN

“We are a nonprofit corporation focused on helping make the world around us a better place. We partner with student organizations to organize events and fundraisers to raise awareness for adults with special needs and fund special needs adoptions for Kentucky families.”

 
 
 

CHLOE’S FOUNDATION

BOARD MEMBER CHLOE KONDRICH

“The concentration of Chloe’s Foundation will be helping children with Down Syndrome and their families to have a healthy, happy, productive LIFE where the focus is on the ABILITIES of the individual with Down syndrome in social, educational, and community settings.”

 
 
 
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Hearts of Joy International

AMBASSADOR LAUREN COSTABILE

“Hearts of Joy International provides life saving heart surgery for individuals with Down syndrome where families can't afford medical care. We exist to help these children reach their full potential in life by granting them access to open heart surgery.”

 
 
 
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THE MIRACLE LEAGUE OF WESTERN MASSACHUSETTS

“All children and young adults of all abilities should have the chance to play baseball. Founded by Tammy and Ernie Fitzell Jr., the Miracle League of Western Massachusetts serves all communities in Western Mass and Northern Connecticut.”

 
 
 
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MOYINoluwa RAINBOW FOUNDATION

Nigeria, Africa

“Our mission is to create an enabling environment for children living with Down Syndrome by educating, harnessing their potentials and integrating them into society. Our vision is to create a world where people living with Down Syndrome can live life to it’s fullest.”

 

 BOARD OF DIRECTORS

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Ellie Fizer

Currently enrolled in a local college, Ellie is getting a higher education while working toward her dream of becoming a dancer. Ellie’s main focus is on the people with Down syndrome in who have been “left behind” in terms of basic needs.

ellie.fizer@savedownsyndrome.com

 
 
 
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Justin Magee

As a model, musician, and photographer, Justin shows people that people with Down syndrome are just as capable as those without it. Justin wants to provide a platform for the many talented people of the world with Down syndrome to show their skills.

justin.magee@savedownsyndrome.com

 
 
 
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Madeline Stuart

Madeline is an international clothing designer and supermodel who has walked the well known stages of NYFW, PFW, and LFW. With notable publications such as Vogue and Forbes following her success, she has a global platform to educate others.

madeline.stuart@savedownsyndrome.com

 
 
 
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Roger Pullen

Retirement is not in Roger’s vocabulary after spending 30 years working for SUNY Oswego, volunteering for his local fire department, and picking up shifts at his local YMCA. Roger is focused on the education of people with Down syndrome.

roger.pullen@savedownsyndrome.com

 
 
 
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Trista Kutcher

This Barista spends her free time doing cross fit and dancing hip hop. With over 42K followers on Instagram, Trista has built a platform to showcase her focus: that people with Down syndrome are not only capable of working, but are wonderful employees.

trista.kutcher@savedownsyndrome.com

 
 
 
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Chloe Kondrich

Chloe has made a large impact through her foundation, Chloe’s Foundation, and her legal action of getting Chloe’s Law signed into legislation. Having met the President and spoken at the UN, Chloe is focused on legislation affecting people with Down syndrome.

chloe.kondrich@savedownsyndrome.com

 
 
 
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Kurt Kondrich

Kurt served as a city cop for 20 years, and has dedicated his life to advocating for people with Down syndrome through his work with his daughter, Chloe. Along with Chloe, Kurt is focused on legislation affecting people with Down syndrome.

kurt.kondrich@savedownsyndrome.com

 
 
 

Rosanne Stuart

Rosanne is the full time manager of her supermodel daughter, Madeline. Through her work with Madeline, Rosanne has a global platform to educate others about Down syndrome, specifically parents of people who have Down syndrome.

rosanne.stuart@savedownsyndrome.com

 
 
 
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Genie Mergard | I’m Not a Meme Leader

Currently attending SUNY Oswego, this Air Force Veteran dedicated her life to saving Down syndrome after having a daughter with Down syndrome. Genie is focused on the societal discrimination and mistreatment of people with Down syndrome.

genie.mergard@savedownsyndrome.com

 
 
 
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Mason Tinal | Director of media

Currently obtaining a Bachelors of Science in Nursing degree, Mason uses his skills from his clinical education, as well as from his time working for Target Corp., to manage the customer service, social media, and organizational aspects of Save Down Syndrome, Inc.

mason.tinal@savedownsyndrome.com

 
 
 
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Lindsay Robertson | Vice President & Treasurer

Through her books about her daughter, Charlie, Lindsay aims to educate other about people with Down syndrome. Lindsay is the leader of the Organ Discrimination Movement, manages our blog, and is our Vice President and Treasurer.

lindsay.robertson@savedownsyndrome.com

 
 
 
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Kaitlin Pepper | Founder & President

Kaitlin founded Save Down Syndrome midway through obtaining her Bachelors of Science in Nursing degree. Kaitlin manages our ambassadors and volunteers, and oversees all operations at Save Down Syndrome.

kaitlin.pepper@savedownsyndrome.com