Posts tagged save down syndrome
My interview with Jan Worthington, a trailblazer for the Down syndrome community

As soon as I heard the beginning of Jan’s story, I needed to know the rest.  I was fascinated by the idea that she had been on this journey for so long—and especially that she chose to take her son with Down syndrome home in a time when the vast majority of kids born with Down syndrome were taken away shortly after birth and put into institutions.

When I met Jan, I think I asked her about a million questions.  I wanted to know all about her journey with her son—how it was to raise him, what he’s like now and what advice she had for me as I started on my own journey raising a child with Down syndrome.

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Dear Iceland, Meet My Son with Down Syndrome

ICELAND HAS BECOME A TRIGGER WORD IN THE DOWN SYNDROME COMMUNITY.

It began last August when CBS News “On Assignment” reported the birth rates of people with Down syndrome diminishing to nearly zero in Iceland. The headline read: “’What kind of society do you want to live in?’: Inside the country where Down syndrome is disappearing”  the short version is this quote:

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Intervention? How early and how much will it impede in our lives?

When should you start early intervention?  Just like that extra chromosome, it’s different for every child. Studies show early intervention does make a difference. The evaluator will come to your home to observe your child and will then make recommendations. The recommendations will include what type of therapy they need at the moment and how often, if at all.

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