"This is a common misconception about all kids with disabilities, that they can’t or won’t learn, especially if they are non-verbal. When the most amazing teacher came in to the FLS class last year, she saw these kids as who they really were, and within one year of this new teacher, every single kid in the class grew leaps and bounds. Julia, who also has Down syndrome and had never been able to communicate now was pointing to “yes” and “no” cards, and making decisions for herself. That gave her so much confidence that she soon became the sassiest teenager I’ve ever met, sneaking out of the room when no one was looking and licking folders when she didn’t want to do her class job. But the biggest change was in Josue.”Read More
Someone recently told me that the head soccer coach at my alma mater -- Xavier University in Cincinnati -- has a little girl with Down syndrome too! I had no idea.
The Xavier soccer coach's name is Andy Fleming. He and his wife Amy have four children, and the second -- a little girl named Devin -- has Down syndrome. Since Devin was born, Andy and Amy have hosted one soccer game per year called "Devin's Game." Devin gets to go out on the field at this annual game, kick the ball around and show people the beauty (and cuteness) of Down syndrome.
s parents of kids who are differently abled, we all strive for one common goal; inclusion and acceptance of our children. You would think it would be easy for kids to make friends with other kids or for people to accept others without questions or hesitations. However, that’s not always the case. But reaching out and educating others is something we can all do in order to help make a change. Kate Manduca, an Ambassador and contributing writer for Save Down Syndrome, did just that. She recently sent a letter to her newspaper, about inclusion and acceptance regarding individuals who have Down syndrome.Read More
In August 2017 after a CBS news crew traveled to Iceland a report was released titled “Inside The Country Where Down Syndrome Is Disappearing”. Since the introduction of more advanced prenatal screening tests in the early 2000’s the vast majority of women in Iceland, almost 100%, who received a positive prenatal test for Trisomy 21, also known as Down syndrome, elected to terminate their pregnancy. On average, only 2 babies are born per year with Down syndrome in Iceland. Geneticist and founder of deCODE Genetics, Kari Stefansson, has studied nearly the entire Icelandic population’s DNA and has his own perspective on the advancements made in medical technology.Read More
On January 10, 2019, Patsy and Albert Christy plead guilty to wreckless homicide for abusing and neglecting their son, Logan, for 20 years until their abuse lead to his death. Logan was kept in his room with a padlock on the door. The window to his room was shattered, the ﬂoor covered with glass and feces, since he was locked in and unable to use the restroom. Logan had been starved, and kept from water. At the time of his death, he had also contracted pneumonia, most likely from the winter air coming through his broken window. For all of this, Patsy and Albert Christy were each only sentenced to 5 years in prison with the option for parole by the following April.Read More
World Down Syndrome day unofficially began in 2005 but was then recognized by the WHO in 2007, the United Nations in 2011 and eventually became a worldwide day of awareness. Being held on March 21st of every year, it signifies the 3 copies of the 21st chromosome.Read More
The word retarded first originated as a medical phrase, “mentally retarded,” from the mid 1890’s which was synonymous for slow or delayed. This term was originally used as a replacement for other derogatory terms at the time like moron or idiot. It wasn’t until the 1960’s that this term took on an entirely different meaning used to insult people.Read More
Many of the facts people know about Down syndrome are actually stereotypes, or are “facts” based on observing the impacts of discrimination and mistreatment. Here is a list of facts that you may not know and as we confirm others we will add them here.Read More
When you research Down syndrome online, you will come across several images that will catch your eye. They all have the same format: a sketch of a baby with Down syndrome surrounded by manifestations of Down syndrome. The format is not the only thing these images have in common. They all contain at least one piece of outdated, and sometimes incorrect, information, as well as a sketch depicting someone with Down syndrome that is offensive to say the least.Read More
We cannot change what Logan’s parents did to him, but we can advocate to get what little justice we can for him now.Read More
As soon as I heard the beginning of Jan’s story, I needed to know the rest. I was fascinated by the idea that she had been on this journey for so long—and especially that she chose to take her son with Down syndrome home in a time when the vast majority of kids born with Down syndrome were taken away shortly after birth and put into institutions.
When I met Jan, I think I asked her about a million questions. I wanted to know all about her journey with her son—how it was to raise him, what he’s like now and what advice she had for me as I started on my own journey raising a child with Down syndrome.Read More
Advocate: (n.) one who defends or maintains a cause or proposal.
When do you begin calling yourself an advocate? Must you apply for a position of power, standing before the courts on another’s behalf? Is there a job description that you must follow? Are there resume build techniques to become an advocate?Read More
October: known for ghosts and ghouls, pink ribbons and puzzle pieces. More often than not, when people think about October, Halloween, Breast Cancer Awareness and Autism Awareness (in Canada) come to mind. People don’t often realize that October is also Down syndrome awareness month. Before having my daughter, Charlie, I had no idea there was even a whole month dedicated to recognizing Down syndrome. How can I expect those who don’t live within the Down syndrome community to know this when I didn’t? Simple - by Advocating.Read More